We have so much to be thankful for today as it is a confirmed engraftment date. This means that cells have situated in the bones and started reproducing for Khaleda’s body -the key step toward her cure from Thalessemia Beta Major. This week a more sophisticated test will be conducted to ensure … More And on the 3rd day…
We are coming out of what I would call the worst week of my life. The emotions experienced ranged from utter despair, to fear, chaos and depression. I was fully informed that this would be the hardest experience of our lives, but I really didn’t understand. Watching your child’s body be ravaged by this … More Merry Christmas!
Twenty five days in this 10 by 14 foot room, I’m going a little stir crazy. We are at day +14 since transplant. There have been very few pleasantries here over the last week. Even if I wanted to describe what Khaleda has been through, words just couldn’t do it justice. Feeling utterly helpless as … More Baby Steps
Yesterday marked one week since our bone marrow transplant. It has been a long 18 days in this hospital room. The symptoms of chemotherapy are in full effect. Aside from pain medication, there is little that can be offered for comfort. Coming to terms with hair loss was a difficult emotional battle. Knowing that … More Day +8 Bone Marrow Transplant
Our first week of the bone marrow transplant is complete. It has been quite an adjustment for all of us. The treatment plan is appropriately called the “road map.” It is a detailed plan for each and every day including procedures and medications needed. We started at Day -10 with surgery to place her central line and … More Week 1- Bone Marrow Transplant
November 22, 2015 This marks the first day of the next major phase of our lives. Khaleda and I woke up early to begin our drive to Durham, NC. We were scheduled for a blood draw at 10:00am at the Children’s Hospital at Duke Medical Center. Tomorrow, she has surgery for her … More The next phase
Thirty three days in India, twenty seven hours of travel home, one tortuous 15 hour flight, navigating through four airports with one toddler, carrying two loaded backpacks including 21 matchbox cars (which caused extra scanning in every airport), atleast 6 caffeinated beverages, 10 trips to the airplane potty, one accident before reaching the potty and mommy … More Home Sweet Home
I’m sitting up tonight thinking about every amazing detail of this week. I wish I had the time to share every detail, but it’s just too much. The bone marrow draw was successful Tuesday morning. Due to Sameer’s small size, the doctors were more limited in the amount they were allowed to draw. Immediately after the procedure, Dr. Raj briefly … More Product Arrived!
The last few days have been spent relaxing and getting to know each other better. Sightseeing included a local mall, a science center, Elliot’s beach and the Chennai zoo. Their second beach experience. 3D Cinema: Silas was not impressed! Lunch time at the zoo! Sari shopping at a local market. The fabrics were gorgeous! Khaleda’s … More Procedure Approved!
I’m sorry there has been a delay in my blog posts. It has been an adjustment on many levels. Mike and Lauren are gone now, and Silas is regularly asking for his daddy. They did arrive home safely so we are thankful. What did we do before we had apps like FlightAware? It is just unbelievable that … More Our Blended Family